PROJECT SUMMARY

Health worker with patient using tablet

When All Data is Health Data

Focus Area: Health
Research Program: Data

Thanks to the development of automated, passive, sensor systems with algorithmic forms of processing and machine learning, a growing range of data has become relevant to processes of diagnosis and care. Google, for example, envisions that smart speakers will one day be able to diagnose the onset of Alzheimer’s before individuals or caregivers notice symptoms, and the same is true for a variety of illnesses and conditions ranging from the flu to depression. By the same token, researchers have scraped publicly available social media posts to search for patterns that correlate online behaviour with medical conditions. As tech companies move further into the health care sector, all kinds of data can do double duty as health data in ways that may have important benefits, but also raise issues of privacy and data protection.

This project considers the ethical issues raised by new streams of health data, including how best to regulate the use of the data, its storage, and the infrastructures that collect it. It will also explore the ethical and practical issues raised by emerging forms of automated diagnostics and develop recommendations for regulating the data collection infrastructure and the health uses that derive from ubiquitous data collection.

RESEARCHERS

Mark Andrejevic

Prof Mark Andrejevic

Lead Investigator

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ADM+S Chief Investigator Anthony McCosker

Assoc Prof Anthony McCosker

Chief Investigator

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ADM+S Chief Investigator Megan Richardson

Prof Megan Richardson

Chief Investigator

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ADM+S Investigator Kath Albury

Prof Kath Albury

Associate Investigator

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Jake Goldenfein

Dr Jake Goldenfein

Associate Investigator

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ADM+S Investigator Flora Salim

Prof Flora Salim

Associate Investigator

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ADM+S Investigator Robert Sparrow

Prof Robert Sparrow

Associate Investigator

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ADM+S Investigator Damiano Spina

Dr Damiano Spina

Associate Investigator

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ADM+S Investigator Frank Pasquale

Prof Frank Pasquale

Partner Investigator

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PARTNERS

Australian Red Cross Logo

Australian Red Cross

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OVIC Logo

Victorian Information Commissioner

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